Understanding Health Data Access - HQIP

Understanding Health Data Access
HQIP

• The Understanding Health Data Access (UHDA) project is a suite of resources designed to improve accessible, introductory information to rules and processes surrounding how health and care data can be shared for research, innovation, healthcare improvement and other uses beyond individual patient care. It provides
• an overview of how to design projects which both protect patient privacy and meet legal requirements
• an understanding of how to construct data applications clearly, thereby improving the chances of success and reducing the risk of avoidable delays.

Information Governance portal

Information Governance portal
NHS X October 2020

• The new Information Governance online portal is a one stop shop for access to national information governance (IG) guidance for frontline staff, IG professionals and the public. 
• Read more about it in the blog 1 October 2020.

Information Governance in local quality improvement

Information Governance in local quality improvement

HQIP 14 June 2017 updated 8 September 2020

• This guide describes how Information Governance laws and principles apply to the use of personal data in local or regional multi-agency healthcare quality improvement studies such as clinical audit, productivity reviews, intervention testing, and service evaluation.

AI Governance Map

AI Governance Map v.2.0
NESTA 4 February 2020

• Updated map and database covering global activities related to the governance of artificial intelligence.

Moving Beyond the Hype: Reflection Paper on Big Data and AI

Moving Beyond the Hype: EPHA Reflection Paper on Big Data and Artificial Intelligence
European Public Health Alliance November 2019

• The purpose of this paper is to reflect on Big Data and AI with a public health perspective. It outlines actual and potential uses, describes the effects they exert on health systems and healthcare, and highlights a number of concerns to ensure that data use and governance occurs in the most ethical and fair way possible.

Project ExplAIn interim report

Project ExplAIn interim report
ICO 3 June 2019

• Project ExplAIn is a collaboration between the Information Commissioner’s Office (ICO) and The Alan Turing Institute (The Turing) to create practical guidance to assist organisations with explaining artificial intelligence (AI) decisions to the individuals affected. This report sets out findings from public and industry engagement research.
• Three key themes relating to explaining AI decisions emerged: 1. the importance of context; 2. the need for education and awareness; and 3. the challenges in providing explanations.

The challenges of cybersecurity in health care

The challenges of cybersecurity in health care: the UK National Health Service as a case study

The Lancet Digital Health  v1(1), Pe10-e12, 01 May 2019

• In general, limited budgets and time-consuming approval processes are attenuating the NHS's ability to adapt to evolving technological challenges. The complexity of NHS organisational structures because of the large number of ALBs and sovereign organisations makes accountability difficult. (See Fig below)

Reprinted from https://doi.org/10.1016/S2589-7500(19)30005-6

Citizen Identity project re-branded as NHS Login

Citizen Identity project re-branded as NHS Login
Digital Health 9 November 2018

• NHS England’s flagship single login process, Citizen Identity, has been re-branded as NHS login.
• The service is intended to make it possible to use a single login to access digital health and care services. The idea is also to ensure individuals only have to verify their identity once to gain access to a range of services.
• The verification process will involve submitting a photo of an identity document. Users will then be asked to submit a short video of themselves, which will be compared with the document photo to confirm identity.
• One of the first services to NHS login will be the NHS App.

Health & Care GDPR update

Health & Care GDPR update
Mills & Reeve 27 June 2018

• This update looks at some of the important ongoing GDPR and cybersecurity compliance issues facing data controllers and data processors and the rights that individuals now have under the new UK and EU privacy regime.
• See also Mills & Reeves GDPR Hub

Data Security and Protection Toolkit

Data Security and Protection Toolkit
NHS Digital

• The Data Security and Protection Toolkit is an online self-assessment tool that enables organisations to measure and publish their performance against the National Data Guardian's ten data security standards. All organisations that have access to NHS patient data and systems must use this toolkit to provide assurance that they are practising good data security and that personal information is handled correctly.
• The toolkit replaces the previous Information Governance toolkit from April 2018.