Engaging Patients and Families in Safety: Recommendations, Resources, and Case Examples

Engaging Patients and Families in Safety: Recommendations, Resources, and Case Examples
IHI Team 24 February 2021

• Evidence-based practices, widely known and effective interventions, exemplar case examples, and newer innovations to support the US “Safer Together: A National Action Plan to Advance Patient Safety.”

The use of public engagement for technological innovation: literature review and case studies

The use of public engagement for technological innovation: literature review and case studies
Department for Business, Energy & Industrial Strategy 28 January 2021

• Research describing evidence on the current use of public engagement for policy development and regulation of technological innovation.

Building common purpose: Learning on engagement and communications in integrated care systems

Building common purpose: Learning on engagement and communications in integrated care systems
NHS Confederation 15 December 2020

• “engagement and communications play a crucial role in supporting integrated care systems, and the partners that make them up, to achieve stronger relationships, more open and transparent ways of working, greater trust, more engaged staff and, ultimately, better outcomes for the public.”

Development, implementation and evaluation of an online course on evidence-based healthcare for consumers.

Development, implementation and evaluation of an online course on evidence-based healthcare for consumers.
BMC Health Serv Res 20, 928 (2020). https://doi.org/10.1186/s12913-020-05759-5

• Description of a [USA] free, online course for consumers, Understanding Evidence-based Healthcare: A Foundation for Action (“Understanding EBHC”) offered through the Johns Hopkins Bloomberg School of Public Health. The course was found to be” a step toward meaningful consumer engagement.”

Partnering with frail or seriously ill patients in research: a systematic review.

Partnering with frail or seriously ill patients in research: a systematic review.
Research Involvement and Engagement. 2020;6:52. 11 Sep 2020 . doi:10.1186/s40900-020-00225-2

• A systematic review of the evidence highlighted 30 studies which studied the engagement of frail and/or seriously ill patients as research partners. IT identified a range of barriers but concludes these can be mitigated when researchers ensure that the purpose of engagement is well-defined, the timing and methods of engagement are flexible, and the practical and emotional needs of patient partners are addressed throughout the process.

Strategies for Patient, Family, and Caregiver Engagement

Strategies for Patient, Family, and Caregiver Engagement
Effective Health Care programme 26 August 2020

• This Technical Brief applies a framework to create a map of the currently available evidence on patient and family engagement strategies that have been used to help people manage chronic conditions.

Public deliberation in the use of health and care data

Public deliberation in the use of health and care data
OneLondon July 2020

• Summary of findings from OneLondon Citizens’ Summit held over two weekends in February and March 2020 to discuss, debate and deliberate some of the complex issues as to how the London health and care system should be joining-up and using people’s data to support individual care, to plan public services, and to enable research.
• This report will allow development of a single set of policies for joining up people’s health and care data in a way that is legitimate and continues to build trust and confidence. 

Person-centred data collection methods to embed the authentic voice of people who experience health challenges

Person-centred data collection methods to embed the authentic voice of people who experience health challenges
BMJ Open Quality 2020;9:e000912. doi: 10.1136/bmjoq-2020-000912

• This review describes five of person-centred research methods which “enable the authentic voice of individuals who experience health challenges to be collected” – interviews, focus groups, citizen juries, photo elicitation and video-reflexive ethnography.

Changing health care with, for, or against the public

Changing health care with, for, or against the public: an empirical investigation into the place of the public in health service reconfiguration
Journal of Health Services Research and Policy, 19 July 2020 https://doi.org/10.1177/1355819620935148

• Through analysis of policy documents and interviews the researchers examine different approaches taken to involving the public in service reconfiguration in the UK. They identify three frames: an adversarial approach (change against the public); a communications approach (change for the public); and a collaborative approach (change with the public). 
• These three framings involved different levels of managerial time, energy, and resources and called on different skill sets, most notably marketing and communications for the communications approach and community engagement for the collaborative approach.

Abstract

A Machine Learning Approach to Understanding Patterns of Engagement With Internet-Delivered Mental Health Interventions

A Machine Learning Approach to Understanding Patterns of Engagement With Internet-Delivered Mental Health Interventions
JAMA Netw Open. 17 July 2020;3(7):e2010791. doi:10.1001/jamanetworkopen.2020.10791

• Question Can machine learning techniques be used to identify heterogeneity in patient engagement with internet-based cognitive behavioral therapy for symptoms of depression and anxiety?
• Findings In this cohort study using data from 54 604 individuals, 5 heterogeneous subtypes were identified based on patient engagement with the online intervention. These subtypes were associated with different patterns of patient behavior and different levels of improvement in symptoms of depression and anxiety.
• Meaning The findings of this study suggest that patterns of patient behavior may elucidate different modalities of engagement, which can help to conduct better triage for patients to provide personalized therapeutic activities, helping to improve outcomes and reduce the overall burden of mental health disorders.

Mapping and working with marginalised communities

Mapping and working with marginalised communities
Ambition for Ageing July 2020

• A workbook to guide you in identifying and supporting seldom heard communities in your neighbourhood. Part of A spatial approach to working with marginalised communities.

UK Standards for Public Involvement in Research

UK Standards for Public Involvement in Research

• The UK Standards for Public Involvement are designed to improve the quality and consistency of public involvement in research. The standards are a description of what good public involvement looks like and encourage approaches and behaviours that are the hallmark of good public involvement such as flexibility, sharing and learning and respect for each other.
• Read about the six UK standards and their supporting materials here including the new Handbook

Digital exclusion and digital inclusion

Digital exclusion GP map of England
Citizens Online 29 April 2020

• A digital exclusion risk map of England, to help understand community needs in the Coronavirus pandemic.
• The map shows GP surgeries with higher numbers of people aged 65 and older on their
  registers and GP surgeries with the lowest levels of digital engagement.

See also: Digital inclusion in the time of COVID-19: An evidence summary

Compiled by Michael Cook – Public Health Evidence and Knowledge Specialist, Bolton Council, May 2020. (Contact anne.gray5@nhs.net  for a copy of this report.

Understanding the public’s role in reducing low-value care: a scoping review.

Understanding the public’s role in reducing low-value care: a scoping review.
Implementation Sci 15, 20 (7 April 2020). https://doi.org/10.1186/s13012-020-00986-0

• The objective of this scoping review was to systematically examine the literature describing public involvement in initiatives to reduce low-value care.The majority of included citations were published following inception of Choosing Wisely in 2012. 
• Of the 218 studies identified 156 (72%) focused on patient engagement within the patient-clinician interaction, using tools that included shared decision-making (n = 66, 42%) and patient-targeted educational materials (n = 72, 46%), and reported both reductions in low-value care and improved patient perceptions regarding low-value care. Thirty three studies (15%) examined public involvement in low-value care policy-making. Forty one studies were from Europe.

Abstract

WHO tool for behavioural insights on COVID-19

WHO tool for behavioural insights on COVID-19
WHO April 2020

• This document provides guidance to Member States in the WHO European Region that wish to conduct behavioural insights studies related to COVID-19. Studies can be used to monitor public knowledge, risk perceptions, behaviours and trust with the overall aim to inform national COVID-19 outbreak response measures, including policies, interventions and communications.

NHS Health Check digital exemplar discovery findings

NHS Health Check digital exemplar discovery findings
PHE March 2020

• This exploratory work looks at the potential role of digital within the NHS Health Check. More specifically, the purpose is to establish: who the NHS Health Check users are; what their needs are and what they are trying to achieve; and any problems they might experience as they engage with the service. The team used a blend of service design and behavioural science techniques to establish where along the user journey digital could support, personalise and enhance end user, provider and commissioner experience.
• The NHS Health Check Website ‘Commissioner and Providers’ section has a range of national guidance including the annual Best Practice Guidance and Programme Standards.

Tips, Tools, and Examples for Event Organizers During the Coronavirus Outbreak

A Comprehensive List of Tips, Tools, and Examples for Event Organizers During the Coronavirus Outbreak
CMX March 2020

• Tips for cancelling or rescheduling conferences and event
• Tips for running virtual events
• Tools for virtual events and community
• Examples of virtual events

NHS England Engagement Practitioner Network

Engagement Practitioner Network

• The aims of the Engagement Practitioner Network is to share experience and resources. It is open to staff involved in patient or public engagement from the NHS, local government and social care, STPs, ICSs and voluntary and community enterprise organisations. It includes an online hub plus a training programme and events.
• To join the platform and sign up for a monthly bulletin, email england.engagementpractitioner-network@nhs.net

Public engagement in relation to NHS service reconfiguration.

Public engagement in relation to NHS service reconfiguration.
Mills & Reeves 3 February 2020

• Discussion of a judgement where the appellant sought to argue that two CCGs had breached the statutory duty to involve the public at section 14Z2 NHS Act 2006 (because the consultation needed to have taken place before the “retain services” option was discarded which had been done in committee) and that the consultation exercise undertaken by the CCGs was unlawful because it did not include consultation on a ‘do nothing’ option / did not explain why it had been rejected.

Use and reporting of experience-based codesign studies in the healthcare setting: a systematic review

Use and reporting of experience-based codesign studies in the healthcare setting: a systematic review
BMJ Quality & Safety 2020;29:64-76. 12 December 2019

• A systematic review of the research around experience-based codesign (EBCD) demonstrates that adherence to the 10 activities embedded within the eight-stage EBCD framework ranged from 40% to 100% with only three studies satisfying 100% fidelity.

Abstract